My Life as a Puddle

Creating hyperhidrosis hope and awareness one drop at a time.

This Five-Year-Old
Has Hyperhidrosis

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This 5 year old has hyperhidrosis

Please welcome Hayley from the UK. She is my very first guest blog post! Her daughter Jess is five years old and suffers from hyperhidrosis. Here is Jess’s sweaty story.

Diagnosed With Hyperhidrosis at 10 Months Old

Our daughter Jess was diagnosed with hyperhidrosis at 10 months old. We first noticed her excessive sweating of her hands and feet at around four months old. As we were having a heat wave here in the UK, we automatically put it down to the weather and her being a baby. We kept her cool, hydrated, etc. However, it was then that we noticed there must be more to it, as the sweating continued.

Doctors here had never known a child so young to suffer from this condition. It took a lot of our own research and frequent trips to see medical professionals before they finally diagnosed her with hyperhidrosis.

It began to be a problem when she started learning to walk. She would slip and slide as her feet were soaked, resulting in her not wanting to walk anywhere or even put her feet down on certain surfaces.

Pediatric Treatments for Hyperhidrosis

She was referred to a dermatologist at our local children’s hospital, where we have tried numerous treatments. She was prescribed Driclor solution, which she hated as it is a liquid solution, which has to soak into the skin and can take some time to dry.

She tried oxybutynin hydrochloride medication, which made her mouth sore and dry.

Jess has described herself as having a “yucky (horrible) feeling inside” when she begins to sweat. She also gets very frustrated and angry.

As we don’t know anyone else with this condition, it is heartbreaking as a parent to not understand fully what your child is going through. We can only try to interpret what she is saying and try to understand how she is feeling.

Iontophoresis for Excessive Sweating

We welcome any information from adults with this condition to help us to understand how others feel. As a last resort, the dermatologist referred her for iontophoresis treatment at our children’s hospital. We researched this ourselves and decided to allow her to have the treatment.

We explained to our daughter what would happen during the treatment and told her she would have ice powers like her favourite Disney princess once the treatment was done, as it should stop her “sweaty thing” as she calls it. After all, the 98% success rate during studies gave us great hope that this should work.

She was the best patient and even surprised the nurses and specialists at how well she behaved during the treatment. She attended 10 sessions over the space of four weeks, increasing the intensity each time. We were told it would gradually improve with each session. Unfortunately, the treatment had a reverse effect and resulted in her hyperhidrosis worsening.

As her parents we felt like we had let her down and felt guilty for putting her through the treatment.

Carpe Lotion for Hyperhidrosis

As we had exhausted all other options available to us, I continued to search the web. It was then we came across Carpe lotion. As Carpe had also been posted on Maria’s blog, My Life as a Puddle, we thought we would give it a try after contacting the company directly and discussing with our dermatologist.

Carpe Lotion and My Life as a Puddle

Carpe lotion is available over the counter to treat sweaty hands and feet.

I am pleased to say that although Carpe lotion has not yet taken away her sweating all together, it has definitely reduced it dramatically after only a short amount of time she has used it, giving us hope we have found something that has finally worked after five long years.

This has given our little girl her confidence back, improving her ability to hold her pencil in school and run around in sandals. Her school teacher has even commented on her joining in more often in games where the children hold hands. All of the usual things we all take for granted.

Jess is 5 years old and has hyperhidrosis

Kevin and Hayley with their two daughters, baby Sophia and 5-year-old Jess

We are so proud of our beautiful little girl for everything she has been through and everything she will continue to face as a person with hyperhidrosis. She is such a happy, positive little girl and a true inspiration already at the age of five.

Thank you Hayley for sharing Jess’s story first with me, and now with the world. Jess is a brave little girl, and I will never stop fighting for more hyperhidrosis awareness and treatment options for people like her.

Do you have a sweaty story?

I’m opening up my blog to the larger hyperhidrosis community. If you’d like to be featured, please fill out the form on my Contact Me page. In the subject line, enter Guest Post. Not a writer? No worries! I can edit your story, send you questions to answer to create one, or you can record a video (note: videos aren’t accepted via my contact form, so let me know on the form if you want to create a video). I’m looking for stories that are at least a few paragraphs long (or a few minutes long if you’d like to do a video) versus just a sentence or two.

You can remain anonymous if you’d like when I post your story. Or, you can use your name. Whatever you’re most comfortable with. I know it’s hard to speak up about your sweaty secret. But once you tell your truth, I promise you it feels so much better to let it out! Remember, you are not your diagnosis.

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(Disclaimers: Individual results may vary when seeking treatment for hyperhidrosis. Remember that each person is unique, and what works for one person may not work for another. Only you and your doctor can determine what’s best for you. I am an affiliate for Carpe lotion; the opinions expressed herein remain my own or belong to the person who is speaking about it.)

5 Comments

  1. Michelle Raiford

    July 21, 2018 at 0:00

    Hi Jess! I have had HH of the hands and feet for as long as I can remember. I first noticed it in school when I was learning to spell and write. My hands would soak through the paper. Over the years, I’ve tried Drysol, iontopheresis, and Carpe lotion. I’ve had some success with Carpe, but I’m always forgetting to apply it. I don’t like that HH hinders me from some activities, but I have learned to cope with it. I always have a handkerchief with me. Instead of hiding my condition, I talk about it. Earlier today in fact, I showed a friend how sweaty my hands were. She had no idea! I hope that as you grow older, there will be even more treatments for HH. In the meantime, do your best to accept this part of yourself. Love yourself and embrace everything that makes you unique–even the annoying sweat monster. Love to you and your family.

    • Hayley Carlisle

      July 22, 2018 at 0:00

      Hi Michelle, I am Jess’ Mum.
      Thank you for taking the time to read about our journey dealing with HH. I read out your comment to Jess. When you mentioned school and soaking paper, she said “that’s like me!”
      No matter how many times we have spoken with her about it, I think it’s only now she has realised it’s not just her dealing with this condition. It’s given her a feeling of belonging to a new group of people she didn’t realise existed. Thank you for your support and kind words.

  2. Hayley, thank you so much for sharing your daughter’s story. I can already tell you are an amazing mom (mum). I wish I felt close enough to my mom to confide in her about how embarrassed and bothered I felt about my sweaty hands when I was Jess’s age. The fact that Jess can share her feelings openly with you, and that you’ve sought out treatment and support for her, is *everything*.

    As you probably know, it’s not the circumstances we face in life but our thoughts about them that determine our experience. It is possible to be a confident and happy person with hyperhidrosis. No treatment has ever worked for me, but I have peace about the condition now. I’m 44.

    • Thanks for reading, Barbara! I agree with you. Mindset is everything! We are so much more than our diagnosis.

    • Hayley Carlisle

      January 31, 2020 at 0:00

      Thank you so much for your kind words and for taking the time to read our story. Jess is an amazing little girl. She has such a grown up outlook on life, it’s hard to believe she is only 6. We shared her story and continue to work with Maria in the hope of raising awareness for other children and parents in the same position as us. The messages we have received from people all over the world has given Jess the confidence to continue to help others. She said if she can help another child with the same “sweaty thing” as she calls it, then she will be happy.
      I treasure the relationship I have with my girls. We are so lucky to have the same close relationship with my Mum. I hope through Jess sharing her story and experiences that it helps others to open up about their condition and get the help and support they need.

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