My Life as a Puddle

Creating hyperhidrosis hope and awareness one drop at a time

Clearing My Vision

We were at the hospital almost all day, so after my uncle left I decided to go for a walk to clear my head and get away from the heavy atmosphere of the chemotherapy unit. I took some pictures of the downtown area and the college and then walked back in the windy cold, my hands sweating in my pockets.

The-Cathedral-of-Learning                  Trees-Downtown                  A-shedding-tree

Remember those blessings I was talking about in my previous post that I said were gifted to me? As I was entering the lobby of the hospital to go back upstairs, my friend who is becoming a life coach called me. She had been working on a vision statement for me as part of her training and said she felt like she was supposed to call and read it to me that day because there was something I needed to hear. She wasn’t sure what part it was, but she knew I would know once I heard it.

 

I won’t share with you the entire vision statement (it’s pretty long), but the parts I needed to hear were so powerful! You are living the life you love! Among your greatest blessings is your knowing that you are a unique and precious child of God. Because you believe in the power of living a life greater than yourself, you are able to excel in grace and kindness to others. You take risks because you realize the outcomes will be for the greater good. You are constantly aware of your ability to empower others! Your life now makes a blessed difference in the world! You look outside of yourself for ways to serve others. When you complete your day, you have full confidence that today mattered!

 

I didn’t write that vision statement, but my friend was able to glean all of that from the conversations we’ve had. It was exactly what I needed to hear during a hard time of unemployment, family health issues, and my own health concern of hyperhidrosis. I’m taking a risk with this blog every time I write a post. I am opening myself up to judgment from others. But so what? Not only am I writing this blog for myself, to finally live my puddle-riffic truth, I am writing this blog for you. If I can inspire you through the story of my life and make you feel like you’re not alone, that is success to me. There have been many times these past few months where I’ve felt alone, and not necessarily due to my hyperhidrosis. There is power in community. So even if the closest you can get to openly sharing your hyperhidrosis with others is by reading what I might have to say, that’s a start. This blog started out as being just for me, but I feel like there is a greater purpose to it now. Perhaps I am supposed to be a puddle so that I can help someone else.

 

The last blessing I want to share with you was gifted to me by my aunt. The night before I flew home, we ordered takeout from this great Italian place. (Vivo Italiano! I am part Italian.) As we were finishing dinner, my aunt left the dining room and came back with a gift for me in celebration of my new job. We were in a stationery store earlier that week, which is one of my favorite places to go. Kelly Rae Roberts has a wonderful collection of cards, plaques, etc. that I really like, and I had specifically pointed one of them out to my aunt. She remembered and got it for me. The sentiment is very fitting. Here it is:

unleash-your-joy-kelly-rae-roberts

(Image: http://kellyraeroberts.com/)

 

After dinner, I checked my email and saw that the other position I had applied for would be conducting a reference check! All of the thoughts and feelings that had been swirling around in my head during the week with my family were starting to come together: forward thinking, the vision statement written by my friend, clearing my head, the sense of community I felt with my family, and how often I think about you, my readers.

 

So wait. Was the fighting for a job over?


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7 Comments

  1. I think it’s wonderful that you’re writing this. It’s very lonely out there for a person with HH. The best part of all the surgeries I’ve had and treatments I’ve tried has actually been being able to correspond with other people who have this condition. No one else can understand what we go through, and how desperate we are for a cure. If you’re seriously thinking about trying to arrange a convention or meetup, I’d be more than happy to help! I’ve never met another person with HH face to face, and I think it would be fun to be able to enjoy ourselves with a group of people without worrying about sweat marks or slippery spots on the floor. I follow your blog on Facebook, feel free to contact me if you’re interested in this idea. We might be able to find some sponsors (pharmaceutical companies, doctors, and clothing manufacturers) and arrange for some media coverage.

  2. I just wanted to thank you for your bravery and honesty in each and every blog post. I to have suffered this condition since I was 10 (now 36). I imagine if I’d had your blog to read especially when I was a teen I would not have felt so alone and like a freak. I can relate to each and every situation you have mentioned where sweating has either gotten in the way or embarrassed you. My main concern now is for my children should they develop the condition and am desperate to find a cure so that they won’t have to live my experiences – especially those of embarrassment, self loathing and depression due to excessive sweating. Reading your blog is helping me to come to a place of further self acceptance so I thank you for that.

  3. Maria, First off, I am SO happy and excited for you regarding your new job opportunities! What an exciting time for you :). I just want to repeat what has already been said here….. you are such an inspiration and I’m so grateful to you for writing about HH. It is a lonely condition and this blog and community is helping tremendously. And I agree with Thalia, a meetup or convention would be life changing! I can’t imagine being with a group of people who know what it’s like to have HH. Powerful! And Jules, I’m so with you regarding the fear about passing it to our kids. I have a 3 year-old boy and that is one of my biggest fears. I feel like I’ve been through so much with HH and as an adult I can handle the pain of it, but I ache for my baby. I’m worried about his future. So I pray and hope everyday that the future will bring a cure, or at least more acceptance and awareness. Thanks for all you are doing Maria! Reading your blog today (and the messages from others) has been so uplifting to me this morning. Have a great day!

  4. Thanks for all the kind and lovely words, ladies! I appreciate your feedback. I would love to arrange a meetup at some point.

  5. I just wanted to say thank you for your blog posts. I had ETS surgery 8 years ago at age 13, and I wish I had someone like you to look up to while I suffered from HH as a kid. You are so inspiring! Keep it up.

    Also, are you from Pittsburgh? I recognize those pictures. I’m from there too!

    • Hi Kelly! Thanks for reading my blog. No, I am not from Pittsburgh, but I do have family there. I love that town. How did your ETS surgery turn out? Do you have compensatory sweating?

  6. Cool! My ETS surgery turned out really well. We actually experimented with cutting only T4 to reduce side effects. This didn’t work, so I repeated the procedure and now have levels T3 and T4 cut. I have no compensatory sweating, but the surgery did not work on my feet and my hands still sweat a little when it’s really hot or when I’m nervous (which I think is normal, but I guess I wouldn’t really know!). Overall I’m really happy with it!

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